Family burden and functional assessment in the Swedish CLIPS-study: do staff and relatives agree on individuals with psychotic disorders’ functional status?
- 239 Downloads
In this study, the individuals with psychotic disorders’ daily life function was investigated on six dimensions considering their relations to family burden. Functional ratings carried out by relatives and staff were also compared.
Totally 88 relatives, to as many individuals diagnosed with a psychotic disorder, participated in this study. Relatives were to rate their own perceived burden and their ill relatives’ physical functioning, personal care skills, interpersonal relationships, social acceptability, activities, and work skills. The outpatient staff, in all 24 case managers also rated the patients’ functional level on the same assessment tool as did the relatives.
Most dimensions of patients’ everyday functioning were highly correlated to relatives’ burden. The two functional dimensions “interpersonal relationships” and “activities” were best at classifying burden when rated by relatives. Also, comparing independent functional ratings by relatives and staff showed that despite great agreements on most dimensions, they differed significantly on “social acceptability” where relatives rated the function to be poorer and “activities” where relatives rated the function to be better.
Relatives, who perceive individuals with a psychotic disorder to be limited in their ability to interpersonal relationships and limited in their ability to activate in everyday life, are more likely to perceive a higher burden. Even though staff and relatives mainly agree on the patients’ functional ability, they often differ in ratings regarding patients’ social acceptability and ability to activate in everyday life. This should be worth considering in clinical practice as well as in future research.
KeywordsPsychotic disorder Family burden Function SLOF BIRP
This study was supported by unrestricted grants from Janssen-Cilag AB, Sollentuna, Sweden. Educational grants were held from the Research & Development Council, West Sweden Region. Authors also acknowledge the excellent technical assistance of Veronica Ahl, Britt-Marie Hansson, Ruth Johansson, and Maivor Olsson.
- 12.Mitsonis C, Voussoura E, Dimopoulos N, Psarra V, Kararizou E, Latzouraki E, Zervas I, Katsanou MN (2011) Factors associated with caregiver psychological distress in chronic schizophrenia. Soc Psychiatry Psychiatr Epidemiol. doi: 10.1007/s00127-010-0325-9 (in press)
- 15.Parabiaghi A, Lasalvia A, Bonetto C, Cristofalo D, Marrella G, Tansella M, Ruggeri M (2007) Predictors of changes in caregiving burden in people with schizophrenia: a 3-year follow-up study in a community mental health service. Acta Psychiatr Scand 116:66–76. doi: 10.1111/j.1600-0447.2007.01094.x CrossRefGoogle Scholar
- 19.American Psychiatric Association (1994) Diagnostic and statistical manual of mental disorders, 4th edn. American Psychiatric Association, Washington DCGoogle Scholar
- 25.Ochoa S, Vilaplana M, Haro JM, Villalta-Gil V, Martínez F, Negredo MC, Casacuberta P, Paniego E, Usall J, Dolz M, Autonell J et al (2008) the NEDES Group. Do needs, symptoms or disability of outpatients with schizophrenia influence family burden? Soc Psychiatry Psychiatr Epidemiol 43:612–618. doi: 10.1007/s00127-008-0337-x PubMedCrossRefGoogle Scholar
- 34.Adewuya AO, Owoeye OA, Erinfolami, AR (2011) Psychopathology and subjective burden amongst primary caregivers of people with mental illness in South-Western Nigeria. Soc Psychiatry Psychiatr Epidemiol. doi: 10.1007/s00127-010-0293-0 (in press)
- 36.Harvey PD, Helldin L, Bowie CR, Heaton RK, Olsson A-K, Hjärthag F, Norlander T, Patterson TL (2009) Performance-based measurement of functional disability in schizophrenia: a cross-national study in the United States and Sweden. Am J Psychiatry 166:821–827. doi: 101176/appiajp200909010106 PubMedCrossRefGoogle Scholar