Abstract
In a questionnaire study 140 subjects answered 4200 questions in 1980 and 1986. They consisted of patients with myeloma, acute leukemia, lung carcinoma, and non-malignant disease and their relatives. In 22 additional cases the questionnaire was not answered.
The results show that myeloma patients are less content with the general care than leukemia patients (P < 0.05). Similarly, relatives of deceased myeloma patients are less satisfied with the information given to them than relatives of deceased leukemia patients (P < 0.001). The information has improved with time, however, since the patients were more satisfied in 1986 than in 1980 (P < 0.001) and relatives of myeloma patients still alive were more satisfied than relatives of patients who had died earlier (P < 0.001).
The opinions of patients were similar to those of their relatives. However, the relatives of leukemia patients were even more satisfied with the contact with the medical staff than the patients themselves (P < 0.05).
As many as 10–30% of the relatives never gave up hope for their relative’s survival. Only two out of 27 deaths were considered not dignified.
The lung carcinoma patients reported a less good quality of life (P < 0.001), and less satisfaction with the information given (P < 0.01), than the hematological patients from the same year. Similarly, their attitude to the medical care improved less (P < 0.01), and they were less content with the general care than the leukemia group (P < 0.05).
The non-malignant patients rated their quality of life less highly than the hematological patients from the same year (P < 0.001). They were also less satisfied with the contacts with the staff (P < 0.001) and with the information given (P < 0.001).
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References
Priestman T J, Baum M: Evaluation of quality of life in patients receiving treatment for advanced breast cancer.Lancet 1, 899 (1976).
Bernheim J: Anamnestic comparative selfappraisal: a measure of the quality of life of cancer patients.Proc Am Soc clin Oncol 21, 357 (1980).
Spitzer W O, Dobson A J, Hall J, Chesterman E, Levi J, Shepherd R, Battista R N, Catchlove B R: Measuring the quality of life of cancer patients. A concise QL-index for use by physicians.J chron Dis 34, 585 (1981).
Sygarbaker P H, Barofsky I, Rosenberg S A, Gianola F J: Quality of life assessment of patients in extremity sarcoma trials.Surgery 91, 17 (1982).
Schipper H, Clinch J, McMurray A, Levitt M: Measuring the quality of life of cancer patients: the functional living index-cancer: development and validation.J clin Oncol 2, 472 (1984).
Reizenstein P: Quality of life in cancer patients.Med Oncol Tumor Pharmacother 3, 51 (1986).
Karnofsky D A, Abelmann W H, Craver L F, Burchenal J H: The use of the nitrogen mustards in the palliative treatment of carcinoma.Cancer 1, 634 (1948).
Beck A T, Ward C H, Mendelson M, Mock J, Berbaugh J: An inventory for measuring depression.Arch gen Psychiat 4, 561 (1961).
Spielberger C D, Gorsuch R L, Lushene R E:STAI Manual for the State-Trait Anxiety Inventory. Palo Alto, CA, Consulting Psychologists Press (1970).
Melzack R: The McGill pain questionnaire: major properties and scoring methods.Pain 1, 277 (1975).
Katz S, Akpom C A: A measure of primary sociobiological functions.Int J Hlth Serv 6, 493 (1976).
Fazio A F: A concurrent validational study of the NCHS general well-being schedule. DHEW Publication No. 78–1347. U.S. Dept. of Health, Education and Welfare (1977).
Goldberg D P, Hellier V F: A scaled version of the General Health Questionnaire.Psych Med 9, 139 (1979).
Wenger N K, Matton M E, Furberg C D, Elinson J (eds):Assessment of Quality of Life in Clinical Trials of Cardiovascular Therapies. New York, Le Jacq (1984).
Abdellah F G, Levine E: Developing a measure of patient and personnel satisfaction with nursing care.Nursing Res 5, 100 (1957).
Korsch B M, Gozzi E K, Francis V: Gaps in doctorpatient communication. I. Doctor-patient interaction and patient satisfaction.Pediatrics 42, 855 (1968).
Pablo R Y: Assessing patient satisfaction in long-term care institutions.Hospital Administration in Canada 17, 22 (1975).
Risser N L: Development of an instrument to measure patient satisfaction with nurses and nursing care in primary care settings.Nursing Res 24, 45 (1975).
Tessler R, Mechanic D: Consumer satisfaction with prepaid group practice: a comparative study.J Hlth soc Behav 16, 95 (1975).
Larsen D E, Rootman I: Physician role performance and patient satisfaction.Soc Sci Med 10, 29 (1976).
Ware J E Jr, Snyder M K, Wright W R: Development and validation of scales to measure patient satisfaction with health care services. Vol.1 of a final report prepared for the National Center for Health Services Research, Health Resources Administration, Department of Health Education and Welfare, by the School of Medicine, Southern Illinois University. Part A+B Illinois (1976).
Dunt D R, Le Moine Parker M: A comparative study of obstetric care in Greek migrant and Australianborn women. II. Determinants of satisfaction.Med J Aust 2, 80 (1977).
Wilson-Barnett J: In hospital: patients’ feelings and opinions.Nursing Times 78, 29 (1978).
Woolley F R, Kane R L, Hughes C C, Wright D D: The effects of doctor-patient communication on satisfaction and outcome of care.Soc Sci Med 12, 123 (1978).
Israel J:The Patients’ Opinions About the Hospital (in Swedish). Uppsala, Almqvist & Wiksell (1962).
Department of Health and Social Security, the Welsh Office. Report of the Committee on Hospital Complaints Procedure. London, Her Majesty’s Stationery Office (1973).
Ellström A M: Evaluation of out-patient on-call services in Karlstad (in Swedish). Göteborg, Univ. of Göteborg (1977).
Meenan R F, Gertman P M, Mason J H: Measuring health status in arthritis.Arthritis Rheum 23, 146 (1980).
Wiklund I, Lindvall K, Swedberg K: Assessment of quality of life in clinical trials.Acta Med scand 220, 1 (1986).
Olsson G, Lubsen J, van Es G A, Rehnqvist N: Quality of life after myocardial infarction: effect of long term metoprolol on mortality and morbidity.Br Med J 292, 1491 (1986).
Croog S H, Levine S, Testa M A, Brown B, Bulpitt C J, Jenkins D C, Klerman G L, Williams G H: The effects of antihypertensive therapy on the quality of life.New Engl J Med 314, 1657 (1986).
Lebow J L: Consumer assessments of the quality of medical care.Med Care 12, 328 (1974).
Young S R, Hulett R M, van Reesema F S, Griffith E: Computerized system of auditing medical records provides statistical base on which to judge quality of care in institutions. Hospitals,J Am Hosp Ass 46, 68 (1972).
Lindgren B, Persson U: A health index for resource allocation (in Swedish).Läkartidningen 83, 3260 (1986).
Eidinger R N, Schapira D V: Cancer patients’ insight into their treatment, prognosis, and unconventional therapies.Cancer 53, 2736 (1984).
Söderberg S, Tollemar S: Patient interviews — a method to elucidate, simplify, and improve the medical service (in Swedish).Läkartidningen 82, 2075 (1985).
Ware J EJr, Snyder M K, Wright W R: Some issues in the measurement of patient satisfaction with health care services. Santa Monica, CA: Rand Paper Series 6021 (1977).
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Preliminarily reported at the First International Symposium for Quality Assurance in Health Care, Paris, November 1986.
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Ösby, E., Reizenstein, P. Quality of life and care in leukemia, myeloma and non-malignant disease. Opinions of patients and relatives, and effects of geography and time. Med. Oncol. & Tumor Pharmacother. 6, 133–141 (1989). https://doi.org/10.1007/BF02985236
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DOI: https://doi.org/10.1007/BF02985236