Zeitschrift für Gesundheitswissenschaften

, Volume 10, Issue 4, pp 305–315 | Cite as

Das recht des patienten auf informationen und informationsbedürfnisse aus sicht der bevölkerung

  • Manfred Wildner
  • Anne Brunner
  • Rolf Weitkunat
  • Heike Weinheimer
  • Manuel Moretti
  • Vibhavendra S. Raghuvanshi
  • Mary Luz Aparicio


Die Bedeutung von Patientenrechten wird seit nunmehr geraumer Zeit von der Weltgesundheitsorganisation (WHO) betont. Es gibt jedoch kaum Studien in Europa, welche die Schritte in diese Richtung dokumentieren. Wir führten zwei telefongestützte Umfragen durch mit dem Ziel, den Erfüllungsgrad von Patientenrechten und die empfundenen Informationsbedürfnisse zu erfassen. Die erste Studie, welche in den Monaten Februar und März 2000 an einer Stichprobe von 502 Probanden durchgeführt wurde, betraf vier deutschsprachige europäische Städte und den Grad der Erfüllung von Patientenrechten. Die zweite Studie, welche in den Monaten Mai bis Juli 2001 an einer Stichprobe von 3008 Probanden durchgeführt wurde, untersuchte die empfundenen Informationsbedürfnisse in der deutschen Bevölkerung. Die gefundenen Erfüllungsgrade waren hoch für: Würde, Selbstbestimmung, menschliche Behandlung, freie Wahl des Behandlers, Vertraulichkeit und Einverständnis. Niedrigere Erfüllungsgrade betrafen die Patienteninformation, die Koordinierung von Behandlung und Pflege an der ambulant-stationären Schnittstelle und das Recht auf humane Behandlung und humanes Sterben am Lebensende. Informationsbedürfnisse betrafen vor allem Erkrankungen des Muskel-Skelettsystems, Prävention und Gesundheitsförderung, Herz-Kreislauferkrankungen, Krebs und administrative Fragen der Krankenversicherung.


Patientenrechte Patienteninformation Gesundheitswissenschaften Umfrage 

The patients’ right to information and citizens’ perspective of their information needs


The European office of the World Health Organization (WHO) is stressing on the importance of patients’ rights and their information need for quite some time now. There is hardly any study in Europe documenting the steps taken in these directions. With the aim of assessing the fulfilment of patients’ rights and their perceived health information needs, we conducted two telephone-based survey studies. The first study, conducted during February - March 2000 on a sample of 502 participants, involved four German speaking European cities, assessing the fulfilment levels with the patients’ rights. The second study, conducted during May to July 2001 on a sample of 3008 citizens in Germany, assessed their perceived health information needs. High degrees of patients’ rights fulfilment were found on: dignity, patient autonomy, humane treatment, free choice among providers, confidentiality and consent. Lower fulfilment was associated with patient information, coordination of care on transfer between inpatient / outpatient care sectors and the right to humane terminal care and dying in dignity. Health information need was felt mostly for: musculoskeletal disorders, disease prevention and health promotion, cardiovascular diseases, cancer and for administrative questions on sickness funds.


Patients’ rights patient information health services research survey 


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Copyright information

© Springer-Verlag 2002

Authors and Affiliations

  • Manfred Wildner
    • 1
  • Anne Brunner
  • Rolf Weitkunat
  • Heike Weinheimer
  • Manuel Moretti
  • Vibhavendra S. Raghuvanshi
  • Mary Luz Aparicio
  1. 1.Bayerischer Forschungs- und Aktionsverbund Public HealthForschungs- und Koordinierungsstelle

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