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Annals of Behavioral Medicine

, Volume 22, Issue 2, pp 158–169 | Cite as

Risk-resistance adaptation model for caregivers and their children with sickle cell syndromes

  • Ronald T. Brown
  • Richard Lambert
  • Danielle Devine
  • Kevin Baldwin
  • Robert Casey
  • Karla Doepke
  • Carolyn E. Ievers
  • Lewis Hsu
  • Iris Buchanan
  • James Eckman
Empirical Articles

Abstract

This investigation examined the risk-resistance adaptation model for children with sickle cell disease and their primary caregivers. Participants were 55 children, ranging in age from 5 to 16 years with a mean age of 9 years 2 months, diagnosed with sickle cell disease and their primary caregivers, recruited from a university medical center. Measures included adjustment (i.e. primary caregiver and child adjustment), risk factors (i.e. disease and disability, functional independence, and psychosocial stressors), resistance factors (i.e. intrapersonal health locus of control, social-ecological), and stress processing (coping). Primary caregivers' adjustment was associated with developmental coping,changeR2=.08, and child adaptation was associated with an internal health locus of control,changeR2=.22. An indirect effect of primary caregivers' coping on child adjustment was found through influence on primary caregivers' adjustment,changeR2=.11. The findings support research among other chronically ill populations that suggests an association between coping and disease adjustment. The results were interpreted to support the use of theoretically driven models in predicting the adaptation of children with chronic illness and adjustment in their caregivers.

Keywords

Primary Caregiver Global Severity Index Child Adjustment Child Adaptation Disengagement Coping 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

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Copyright information

© The Society of Behavioral Medicine 2000

Authors and Affiliations

  • Ronald T. Brown
    • 1
  • Richard Lambert
    • 2
  • Danielle Devine
    • 3
  • Kevin Baldwin
    • 4
  • Robert Casey
    • 5
  • Karla Doepke
    • 6
  • Carolyn E. Ievers
    • 7
  • Lewis Hsu
    • 8
  • Iris Buchanan
    • 9
  • James Eckman
    • 8
  1. 1.Department of PediatricsMedical University of South CarolinaCharleston
  2. 2.University of North Carolina at CharlotteCharlotteUSA
  3. 3.M.D. Anderson Cancer CenterHoustonUSA
  4. 4.University of North Carolina at Chapel HillChapel HillUSA
  5. 5.Yale UniversityNew HavenUSA
  6. 6.Illinois Wesleyan UniversityBloomingtonUSA
  7. 7.Rainbow Babies and Children's HospitalClevelandUSA
  8. 8.Emory University School of MedicineAtlantaUSA
  9. 9.Morehouse School of MedicineAtlantaUSA

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