The effect of family-centered empowerment program on the family caregiver burden and the activities of daily living of Iranian patients with stroke: a randomized controlled trial study
- 89 Downloads
Dependence of stroke survivors regarding the ability to perform activities of daily living imposes a burden on family caregivers. The study evaluated the effect of the family-centered empowerment program on the ability of Iranian patients with stroke to perform activities of daily living, as well as on family caregiver burden. In this randomized controlled trial study, a total of 90 pairs of patients with stroke and their family caregivers was selected and randomly assigned to the intervention or control groups. Patients and their family caregivers participated in four family-centered empowerment program sessions over four consecutive days while the patient was hospitalized. The difference in the ability of patients with stroke in the intervention and control groups to perform activities of daily living was not significant 2 weeks after the intervention. However, the ability of patients with stroke in the intervention group to perform activities of daily living increased significantly 2 months after the intervention compared with the control group: 66 ± 35.95 and 51.31 ± 36.28, respectively (p = 0.047). Two weeks after the intervention, the family caregiver burden significantly decreased in the intervention group (29.55 ± 15.38) compared with the control group (38.77 ± 18.53 and p = 0.012). The burden in the intervention group also decreased 2 months after the intervention compared with the control group: 22.95 ± 15.68 and 36.11 ± 18.88, respectively (p < 0.001). Nurses can use the family-centered empowerment program to improve the quality of life of patients with stroke, and to reduce the burden of family caregivers.
KeywordsStroke Caregivers Activities of daily living Dependency Quality of life
Compliance with ethical standards
Conflict of interest
On behalf of all authors, the corresponding author states that there is no conflict of interest.
Statement of human and animal rights
All procedures performed within this study were in accordance with the ethical standards of the institutional research ethics committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed consent was obtained from all individual participants included in the study.
- 5.Yilmaz CK, Aşiret GD, Çetinkaya F et al (2019) Effect of progressive muscle relaxation on the caregiver burden and level of depression among caregivers of older patients with a stroke: a randomized controlled trial. Jpn J Nurs Sci 16:202–211. https://doi.org/10.1111/jjns.12234 CrossRefPubMedGoogle Scholar
- 6.Zhu W, Jiang YA (2018) Meta-analytic study of predictors for informal caregiver burden in patients with stroke. J Stroke Cerebrovasc Dis 27:3636–3646. https://doi.org/10.1016/j.jstrokecerebrovasdis.2018.08.037 CrossRefPubMedGoogle Scholar
- 9.Alhani F (2003) Evaluating of family-centered empowerment model on preventing Iron deficiency anemia. Tehran, Iran. (Persian): PhD Dissertation, Tarbiat Modares UniversityGoogle Scholar
- 10.Vahedian-Azimi A, Miller AC, Hajiesmaieli M et al (2016) Cardiac rehabilitation using the family-centered empowerment model versus home-based cardiac rehabilitation in patients with myocardial infarction: a randomised controlled trial. Open Heart 3:e000349. https://doi.org/10.1136/openhrt-2015-000349 CrossRefPubMedPubMedCentralGoogle Scholar
- 12.Blomgren C, Samuelsson H, Blomstrand C et al (2019) Long-term performance of instrumental activities of daily living in young and middle-aged stroke survivors—impact of cognitive dysfunction, emotional problems and fatigue. PLoS One 14:e0216822. https://doi.org/10.1371/journal.pone.0216822 CrossRefPubMedPubMedCentralGoogle Scholar
- 19.Vahedian-Azimi A, Miller AC, Hajiesmaieli M et al (2016) Cardiac rehabilitation using the family-centered empowerment model versus home-based cardiac rehabilitation in patients with myocardial infarction: a randomized controlled trial. Open Heart 3:e000349. https://doi.org/10.1136/openhrt-2015-000349 CrossRefPubMedPubMedCentralGoogle Scholar
- 20.Hakim A, Palizban E, Ahmadi Angali K (2015) The effect of family-centered empowerment model on the level of parents’ knowledge of children with ostomy. J Pediatr Nurs 1:22–31 (in Persian) Google Scholar
- 21.Vahedian-Azimi A, Alhani F, Goharimogaddam K et al (2015) Effect of family-centered empowerment model on the quality of life in patients with myocardial infarction: a clinical trial study. J Nurs Educ 4:8–22 (in Persian) Google Scholar
- 22.Teymouri F, Alhani F, Kazemnejad A (2014) The effect of the family-centered empowerment model on the quality of life in parents of children with asthma. Vicenna J Nurs Midwifery Care 22:5–14 (in Persian) Google Scholar
- 23.Sanaie N, Nejati S, Zolfaghari M et al (2013) The effect of family-centered empowerment in self efficacy and self-esteem in patients undergoing coronary bypass graft surgery. J Res Dev Nurs Midwifery 10:44–53 (in Persian) Google Scholar
- 25.Banks JL, Marotta CA (2007) Outcomes validity and reliability of the modified Rankin scale: implications for stroke clinical trials: a literature review and synthesis. Stroke 38:1091–1096. https://doi.org/10.1161/01.STR.0000258355.23810.c6 CrossRefGoogle Scholar
- 29.Abbasi A, Asayesh H, Rahmani H et al (2011) The burden on caregivers from hemodialysis patients and related factors. J Res Dev Nurs Midwifery 8:26–33 (in Persian) Google Scholar
- 36.Bertilsson A-S, Eriksson G, Ekstam L et al (2016) A cluster randomized controlled trial of a client-cantered, activities of daily living intervention for people with stroke: 1 year follow-up of caregivers. Clin Rehabil 30:765–775. https://doi.org/10.1177/0269215515603780 CrossRefPubMedGoogle Scholar
- 37.Masoodi R, Soleimani MA, Alhani F et al (2013) Effects of family-centered empowerment model on perceived satisfaction and self-concept of multiple sclerosis patients care givers. Koomesh 14:240–248 (in Persian) Google Scholar
- 39.Vloothuis J, Mulder M, Nijland RH et al (2015) Caregiver-mediated exercises with e-health support for early supported discharge after stroke (CARE4STROKE): study protocol for a randomized controlled trial. BMC Neurol 15:193. https://doi.org/10.1186/s12883-015-0440-z CrossRefPubMedPubMedCentralGoogle Scholar
- 41.Forster A, Dickerson J, Young J et al (2013) A cluster randomized controlled trial and economic evaluation of a structured training programme for caregivers of inpatients after stroke: the TRACS trial. Health Technol Assess 17:1. https://doi.org/10.3310/hta17460 CrossRefPubMedPubMedCentralGoogle Scholar
- 43.Grove SK, Burns N, Gray J (2014) Understanding nursing research: building an evidence-based practice. Elsevier, AmsterdamGoogle Scholar