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Needs of persons with dementia and their family caregivers in dementia cafés

  • Chie FukuiEmail author
  • Mahiro Fujisaki-Sueda-Sakai
  • Nobutada Yokouchi
  • Yuka Sumikawa
  • Fumika Horinuki
  • Ayako Baba
  • Makoto Suto
  • Hiroko Okada
  • Ryogo Ogino
  • Hyosook Park
  • Junichiro Okata
Original Article
  • 24 Downloads

Abstract

Background and aims

Several studies have shown the effectiveness and diversity of dementia cafés, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia cafés in Japan.

Methods

Interviews and participant observations were conducted in nine dementia cafés. Study participants were persons with dementia, their caregivers, and the staff in dementia cafés. Data were analysed using qualitative content analysis.

Results and discussion

A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia café. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers’ experiences; and to keep in touch with others inside and outside of the dementia café. The needs of persons with dementia and family caregivers differ partly.

Conclusions

Dementia cafés should create programmes and comfortable environments answering to the differences of their needs.

Keywords

Expectation Informal service Japan Qualitative study Requirement 

Notes

Acknowledgements

The authors express their gratitude to all the participants interviewed who were willing to talk about their thoughts and experiences, and to the administrators who accepted and cooperated with this study. This study was financially supported by GLAFS. GLAFS is a graduate programme in gerontology at the University of Tokyo.

Compliance with ethical standards

Conflict of interest

The authors declare that they have no conflict of interest.

Statement of human and animal rights

All procedures performed in this study involving human participants were accodance with the ethical approval.

Ethical approval

Ethical approval was obtained from the Ethics Committee of the University of Tokyo (No. 16-188).

Informed consent

All participants gave written or oral informed consent.

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Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  • Chie Fukui
    • 1
    Email author
  • Mahiro Fujisaki-Sueda-Sakai
    • 2
    • 10
  • Nobutada Yokouchi
    • 3
  • Yuka Sumikawa
    • 2
  • Fumika Horinuki
    • 4
  • Ayako Baba
    • 5
  • Makoto Suto
    • 6
  • Hiroko Okada
    • 7
  • Ryogo Ogino
    • 10
  • Hyosook Park
    • 8
    • 10
  • Junichiro Okata
    • 9
    • 10
  1. 1.Division of Health Sciences and Nursing, Department of Family Nursing, Graduate School of MedicineUniversity of TokyoTokyoJapan
  2. 2.Division of Health Sciences and Nursing, Department of Community Health Nursing, Graduate School of MedicineUniversity of TokyoTokyoJapan
  3. 3.Division of Health Sciences and Nursing, Departments of Health and Social Behaviour, Graduate School of MedicineUniversity of TokyoTokyoJapan
  4. 4.Division of Health Sciences and Nursing, Department of Gerontological Home Care and Long-Term Care Nursing/Palliative Care Nursing, Graduate School of MedicineUniversity of TokyoTokyoJapan
  5. 5.Division of Clinical Psychology, Developmental Sciences, Department of Integrated Educational Sciences, Graduate School of EducationUniversity of TokyoTokyoJapan
  6. 6.Division of Lifelong Learning Infrastructure Management Course, Social Sciences in Education, Department of Integrated Educational Sciences, Graduate School of EducationUniversity of TokyoTokyoJapan
  7. 7.Division of Health Sciences and Nursing, Department of Health Communication, Graduate School of MedicineUniversity of TokyoTokyoJapan
  8. 8.Department of Labour Law, Graduate School of Law and PoliticsUniversity of TokyoTokyoJapan
  9. 9.Department of Urban Engineering, Graduate School of EngineeringUniversity of TokyoTokyoJapan
  10. 10.Institute of GerontologyUniversity of TokyoTokyoJapan

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