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Educational Services for Youth with Fetal Alcohol Spectrum Disorder: Caregivers’ Perspectives

  • Kyle CleverseyEmail author
  • Jason Brown
  • Aamena Kapasi
Original Article
  • 206 Downloads

Abstract

The purpose of this study was to identify services that caregivers of youth with fetal alcohol spectrum disorder believe would help youth with FASD succeed in school. Sixteen caregivers participated in telephone interviews that included the question: “What services would help youth be successful in school?” A concept mapping technique was employed, in which responses were grouped together by participants and the grouping data was analyzed using multidimensional scaling and cluster analysis. Six concepts emerged from the question about services, including the following: (1) being heard by educators, (2) FASD-informed educators, (3) involvement in child’s education, (4) resources and accommodations, (5) supportive knowledge base, and (6) support and understanding at home. Concepts were compared to the existing literature.

Keywords

Fetal alcohol syndrome FASD Education Caregivers Youth Needs Services Concept mapping 

Notes

Acknowledgements

We would also like to thank the caregivers who participated in this study for their time and expertise.

Funding Information

The authors would like to acknowledge the financial support of this research through a grant from the Social Sciences and Humanities Research Council of Canada.

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Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2017

Authors and Affiliations

  1. 1.Western UniversityLondonCanada
  2. 2.University of AlbertaEdmontonCanada

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