Comparison of Online and Face-to-Face Parent Education for Children with Autism and Sleep Problems
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Many children with autism spectrum disorder (ASD) have sleep disorders. Face-to-face (F2F) sessions have empowered parents to help their child sleep. Our goal was whether online technologies could provide similar improvements in children’s sleep while also improving parents’ quality of life. Identical programs were taught in two sessions to F2F and online parents. Measurements were compared from baseline to 4 and 8 weeks post teaching sessions. Twenty-three participants completed the program. Parent quality of life improved for both groups. Parent fatigue scores were improved and sustained for the online group. The total sleep score improved for both groups, while the online group had sustained decreases in night wakings. Online methods can conveniently help improve sleep for children with ASD.
KeywordsAutism Children’s sleep disorders Online teaching Parents’ quality of life Actigraphy Parents’ fatigue
Financial support for this study was provided by the Organization for Autism Research and Children’s Mercy Hospital.
CAR conceived of the study, designed the methods and educational sessions, recruited and consented participants, conducted the educational sessions, distributed the measurement tools, managed the data collection, and drafted the manuscript. KCS collaborated in the conception of the study, managed all of the data associated with actigraphy and interpretation, and helped to draft and revise the manuscript. AKS performed the statistical analysis, designed the statistical tables, and wrote much of the results section of the manuscript. All authors read and approved the final manuscript.
Compliance with Ethical Standards
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
- Carter, I. (2009). Positive and negative experiences of parents involved in online self-help groups for autism. Journal on Developmental Disabilities, 15, 44–52.Google Scholar
- Centers for Disease Control and Prevention. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014. Morbidity and Mortality Weekly Report, 67(6), 1–23.Google Scholar
- Delahaye, J., Kovacs, E., Sikora, D., Hall, T. A., Orlich, F., Clemons, T. E., et al. (2014). The relationship between health-related quality of life and sleep problems in children with autism spectrum disorder. Research in Autism Spectrum Disorders, 8, 292–303. https://doi.org/10.1016/j.rasd.2013.12.015.CrossRefGoogle Scholar
- Humphreys, J. S., Gringras, P., Blair, P. S., Scott, N., Henderson, J., Fleming, P. J., et al. (2014). Sleep patterns in children with autistic spectrum disorders: A prospective cohort study. Archives of Disease in Childhood, 99(2), 114–118. https://doi.org/10.1136/archdischild-2013-304083.CrossRefGoogle Scholar
- Johnson, C. R., Turner, K. S., Foldes, E., Brooks, M. M., Kronk, R., & Wiggs, L. (2013). Behavioral parent training to address sleep disturbances in young children with autism spectrum disorders: A pilot trial. Sleep Medicine, 14, 995–1004. https://doi.org/10.1016/j.sleep.2013.05.013.CrossRefGoogle Scholar
- Katz, T., & Malow, B. (2014). Solving sleep problems in children with autism spectrum disorder: A guide for frazzled families. Bethesda: Woodbine House.Google Scholar
- Owens, J. A., Spirito, A., & McGuinn, M. (2000). The Children’s Sleep Habits Questionnaire (CSHQ): Psychometric properties of a survey instrument for school-aged children. Sleep-New York, 23(8), 1043–1051.Google Scholar
- SAS Institute Inc. (2018). Cary, NC. Retrieved from https://www.sas.com.
- Stokes, M. A., Kornienko, L., Scheeren, A. M., Koot, H. M., & Begeer, S. (2017). A comparison of children and adolescent’s self-report and parental report of the PedsQL among those with and without autism spectrum disorder. Quality of Life Research, 26, 611–624. https://doi.org/10.1007/s11136-016-1490-4.CrossRefGoogle Scholar
- Vriend, J. L., Corkum, P. V., Moon, E. C., & Smith, I. M. (2011). Behavioral interventions for sleep problems in children with autism spectrum disorders: Current findings and future directions. Journal of Pediatric Psychology, 36(9), 1017–1029. https://doi.org/10.1093/jpepsy/jsr044.CrossRefGoogle Scholar
- Weiss, S. K. (n.d.). Strategies to improve sleep in children with autism spectrum disorders: A parents’ guide. Autism Speaks Autism Treatment Network. Retrieved from http://www.autismspeaks.org/family-services.
- Yu, X., Ham, L. S., Au, C. T., Chan, S. H. Y., Chan, D. F., & Li, A. M. (2015). Extended parent-based behavioural education improves sleep in children with autism spectrum disorder. Hong Kong Journal of Paediatrics, 20(4), 219–225.Google Scholar