A Longitudinal Study of Children Diagnosed with Autism Spectrum Disorder Before Age Three: School Services at Three Points Time for Three Levels of Outcome Disability
This study follows 70 children determined to have Autism Spectrum Disorder (ASD) before age three (Time 1). Parents filled out questionnaires and standardized measures about their child when he/she was school-aged (Time 2), including information about their children’s preschool, kindergarten, and grade school educational settings. At Time 2, the researchers placed children in three diagnostic groups of No ASD, ASD-Higher Functioning, and ASD-Lower Functioning. Retrospective results showed that most children were receiving intensive services at the preschool level. In kindergarten, there was some divergence among the three groups, with more intensive services continuing for the ASD groups. At school age, classroom placement and services reflected service patterns that were consistent with these three levels of disability.
KeywordsASD Longitudinal Educational placement Educational services Adaptive behavior
POT conceived of and designed the study, directed data collection, performed the statistical analysis, and drafted the manuscript. KVS collected data and participated in measurement and data analysis. AA and CR collected data and participated in manuscript writing. All authors reviewed the manuscript critically and approved the final version.
This research was supported in part through Grant No. T73MC29073 from the Health Resources and Services Administration. We are very grateful to the families who participated in the research study.
- Cicchetti, D., Bronen, R., Spencer, S., Haut, S., Berg, A., Oliver, P., & Tyrer, P. (2006). Rating scales, scales of measurement, issues of reliability: Resolving some critical issues for clinicians and researchers. Journal of Nervous and Mental Disease, 194, 557–564. https://doi.org/10.1097/01.nmd.0000230392.83607.c5.CrossRefPubMedGoogle Scholar
- Farmer, C., Swineford, L., Swedo, S. E., & Thurm, A. (2018). Classifying and characterizing the development of adaptive behavior in a naturalistic longitudinal study of young children with autism. Journal of Neurodevelopmental Disorders, 10, 1. https://doi.org/10.1186/s11689-017-9222-9.CrossRefPubMedPubMedCentralGoogle Scholar
- Gilliam, J. E. (1995). Gilliam Autism Rating Scale. Austin, TX: Pro-Ed.Google Scholar
- Gilliam, J. E. (2013). Gilliam Autism Rating Scale-3. Austin, TX: Pro-Ed.Google Scholar
- Kleinman, J. M., Ventola, P. E., Pandey, J., Verbalis, A. D., Barton, M., Hodgson, S., … Fein, D. (2008). Diagnostic stability in very young children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 606–615. https://doi.org/10.1007/s10803-007-0427-8.CrossRefPubMedGoogle Scholar
- Pugliese, C. E., Anthony, L., Strang, J. F., Dudley, K., Wallace, G. L., Naiman, D. Q., & Kenworthy, L. (2016). Longitudinal examination of adaptive behavior in autism spectrum disorders: Influence of executive function. Journal of Autism and Developmental Disorders, 46, 467–477.CrossRefGoogle Scholar
- Solomon, M., Iosif, A. M., Reinhardt, V. P., Libero, L. E., Nordahl, C. W., Ozonoff, S., … Amaral, D. G. (2018). What will my child’s future hold? Phenotypes of intellectual development in 2–8-year-olds with autism spectrum disorder. Autism Research, 11, 121–132. https://doi.org/10.1002/aur.1884.CrossRefPubMedGoogle Scholar
- Sparrow, S., Cicchetti, D., & Balla, D. (2005). Vineland Adaptive Behavior Scales (2nd ed.). Circle Pines, MN: American Guidance Services.Google Scholar
- Sparrow, S. S., Cicchetti, D. V., & Saulnier, C. A. (2016). Vineland Adaptive Behavior Scales (3rd ed.). Bloomington: NCS Pearson.Google Scholar
- Szatmari, P., Georgiades, S., Duku, E., Bennett, T. A., Bryson, S., Fombonne, E., … Thompson, A. (2015). Developmental trajectories of symptom severity and adaptive functioning in an inception cohort of preschool children with autism spectrum disorder. Journal of the American Medical Association, 72, 276–283.Google Scholar
- Towle, P. O., Vacant-Shova, K., Shah, S., & Higgins-D’Alessandro, A. (2014). School-aged functioning of children diagnosed with autism spectrum disorder before age three: Parent-reported diagnostic, adaptive, medication, and school placement outcomes. Journal of Autism and Developmental Disorders, 44, 1357–1372.CrossRefGoogle Scholar
- Viera, A. J., & Garrett, J. M. (2005). Understanding interobserver agreement: The kappa statistic. Family Medicine, 37, 360–363.Google Scholar
- Visser, J. C., Rommelse, N. N. J., Lappenschaar, M., Servatius-Oosterling, I. J., Greven, C. U., & Buitelaar, J. K. (2017). Variations in the early trajectories of autism symptoms is related to the development of language, cognition, and behavior problems. Journal of the American Academy of Child and Adolescent Psychiatry, 56, 659–668.CrossRefGoogle Scholar
- White, E. I., Wallace, G. L., Bascom, J., Armour, A. C., Register-Brown, K., Popal, H. S., … Kenworthy, L. (2017). Sex differences in parent-reported executive functioning and adaptive behavior in children and young adults with autism spectrum disorder. Autism Research, 10, 1653-1662.CrossRefGoogle Scholar
- White, S. W., Scahill, L., Klin, A., Koenig, K., & Volkmar, F. R. (2007). Educational placements and service use patterns of individuals with autism spectrum disorders. Journal of Autism and Developmental Disorders, 37, 1403–1412. https://doi.org/10.1007/s10803-006-0281-0.CrossRefPubMedGoogle Scholar