Caring for the person with cancer and the role of digital technology in supporting carers
Informal carers may experience a range of unmet needs during the caring period and, at times, lack support to adequately manage care of the person with cancer and balance personal family and work commitments. The aim of this study was to understand the needs of informal carers of people with cancer and how digital technology may be used to address carers’ needs.
Focus groups and semi-structured interviews were conducted with 45 carers. Carers discussed supports and services they used to address their needs, barriers to accessing support, and how digital technology could assist in meeting their needs.
Carers used informal support such as friends and family and formal support including respite and community groups during the caring period. Barriers to accessing support included reluctance to seek external help, sensitivities associated with prioritising carers’ needs over patients’ needs, and the adequacy of information received. Technology was reported to have the potential to allow carers’ privacy to seek support; however, carers’ attitudes towards technology differed.
Carers require support during the caring period to help balance their own needs with the needs of the person receiving cancer treatment. Digital technology may provide an opportunity to deliver support to carers; however, further research is needed to assess the appropriateness of these interventions to inform improved health outcomes for this vulnerable group.
KeywordsCancer Carer Digital technology Support Unmet needs
This research was supported by scholarships from the School of Nursing and Midwifery, Deakin University, and Eastern Health Foundation.
Compliance with ethical standards
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
- 1.World Health Organisation (2017) Cancer. Who Media Centre. http://www.who.int/mediacentre/factsheets/fs297/en/
- 2.Australian Institute of Health and Welfare (2017) Cancer in Australia 2017. CanberraGoogle Scholar
- 4.Hung H-C, Tsai M-C, Chen S-C, Liao C-T, Chen Y-R, Liu J-F (2013) Change and predictors of social support in caregivers of newly diagnosed oral cavity cancer patients during the first 3 months after discharge. Cancer Nurs 36(6):E17–E24. https://doi.org/10.1097/NCC.0b013e31826c79d0 CrossRefPubMedGoogle Scholar
- 5.Girgis A, Lambert SD, McElduff P, Bonevski B, Lecathelinais C, Boyes A, Stacey F (2013) Some things change, some things stay the same: a longitudinal analysis of cancer caregivers’ unmet supportive care needs. Psycho-Oncology 22(7):1557–1564. https://doi.org/10.1002/pon.3166 CrossRefPubMedGoogle Scholar
- 11.Longacre M, Galloway T, Parvanta C, Fang C, Longacre ML, Galloway TJ, Parvanta CF, Fang CY (2015) Medical communication-related informational need and resource preferences among family caregivers for head and neck cancer patients. J Cancer Educ 30(4):786–791. https://doi.org/10.1007/s13187-015-0814-3 CrossRefPubMedPubMedCentralGoogle Scholar
- 17.Buscemi V, Font A, Viladricht C (2010) Focus on relationship between the caregivers unmet needs and other caregiving outcomes in cancer palliative care. Psicooncología 7(1):109–125Google Scholar
- 18.Boltong A, Byrnes M, McKiernan S, Quin N, Chapman K (2015) Exploring the preferences, perceptions and satisfaction of people seeking cancer information and support: implications for the cancer council helpline. Aus J Cancer Nurs 16(1):20–30Google Scholar
- 19.Badr H, Carmack CL, Diefenbach MA (2015) Psychosocial interventions for patients and caregivers in the age of new communication technologies: opportunities and challenges in cancer care. J Health Commun 20(3):328–342. https://doi.org/10.1080/10810730.2014.965369 CrossRefPubMedPubMedCentralGoogle Scholar
- 20.Foster C, Myall M, Scott I, Sayers M, Brindle L, Cotterell P, Addington-Hall J, Hopkinson J, Payne S, Robinson J (2015) ‘You can’t say, ‘what about me?’ I’m not the one with cancer’: information and support needs of relatives. Psycho-Oncology 24(6):705–711. https://doi.org/10.1002/pon.3716 CrossRefPubMedGoogle Scholar
- 22.Australian Medical Association (2016) Stop the cuts - time for strong investment in health. Australian Medical Association. https://ama.com.au/media/stop-cuts-time-strong-investment-health. Accessed 27.11.17