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Supportive Care in Cancer

, Volume 27, Issue 5, pp 1811–1823 | Cite as

Patient experience of head and neck lymphedema therapy: a qualitative study

  • Jie DengEmail author
  • Robert J. Sinard
  • Barbara Murphy
Original Article

Abstract

Purpose

Lymphedema is a common late effect from head and neck cancer and/or its treatment. Guidelines recommend that patients with lymphedema should be referred for therapy in a timely manner to maximize control of lymphedema-related symptoms. However, there is paucity of information regarding treatment outcomes in the head and neck cancer population. To address this gap, we conducted a qualitative study to gain understanding of head and neck cancer patients’ experience pertaining to lymphedema therapy, barriers to treatment, perceptions concerning physical and psychological benefits, opinions about therapists, and suggestions to enhance outcomes.

Methods

Twenty head and neck cancer patients who underwent lymphedema therapy completed semi-structured face-to-face interviews. Interviews were audio-recorded, and verbatim transcriptions were completed. Thematic analysis was employed to analyze the interview data.

Results

A majority of the participants (n = 15, 75%) completed a full course of lymphedema treatment. Most participants expressed physical (n = 18, 90%) and psychological (n = 14, 70%) benefits about the lymphedema therapy, e.g., decreased swelling, increased swallowing function, and multi-faceted healing. More than one third of the participants described barriers hampering their lymphedema therapy, e.g., insurance coverage, return to work, and availability of lymphedema therapy. Many participants proposed suggestions for improvement of lymphedema therapy, e.g., personalized education, longer treatment time, and caregiver education.

Conclusions

The study has underscored the potential benefit of lymphedema therapy in the head and neck cancer population. Substantial barriers to therapy were reported and need to be addressed. Opportunities to improve lymphedema therapy outcomes were suggested. Personalized strategies should be considered for ensuring optimal patient outcomes.

Keywords

Head and neck cancer Lymphedema Lymphedema therapy Experience Qualitative 

Notes

Funding

This research was supported by the Vanderbilt Office of Clinical and Translational Scientist Development and American Cancer Society.

Compliance with ethical standards

The study was approved by the Institutional Review Board at Vanderbilt University and the Scientific Review Committee at the Vanderbilt-Ingram Cancer Center (VICC).

Conflict of interest

The authors declare that they have no conflict of interest.

Informed consent

Written informed consent forms were obtained from all participants prior to initiating any study-related research activities

Supplementary material

520_2018_4428_MOESM1_ESM.docx (13 kb)
ESM 1 (DOCX 13 kb)

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Copyright information

© Springer-Verlag GmbH Germany, part of Springer Nature 2018

Authors and Affiliations

  1. 1.School of NursingUniversity of PennsylvaniaPhiladelphiaUSA
  2. 2.Vanderbilt-Ingram Cancer CenterVanderbilt Medical CenterNashvilleUSA

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