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Supportive Care in Cancer

, Volume 26, Issue 1, pp 91–98 | Cite as

Information service in head and neck cancer care—a qualitative study

  • Violet D’SouzaEmail author
  • Maiziel Serrao
  • Erin Watson
  • Elizabeth Blouin
  • Anthony Zeitouni
  • Paul J. Allison
Original Article

Abstract

Aim

We aimed to understand how information was delivered to head and neck (H&N) cancer patients and describe the perceptions of the H&N patients concerning information delivery.

Methodology

This qualitative investigation was a part of our larger quantitative study that was conducted with H&N cancer patients at two academic hospitals in Montreal. After obtaining the ethical approval, a purposeful sample of participants was recruited from the main study until the content of the information gathered reached saturation. Data were collected by observing the information delivery and interviewing the study participants and Nurse Pivots. All observations and interviews were audiotaped. Data were transcribed verbatim; transcripts were developed, audited, and subjected to a thematic analysis.

Results

Eleven H&N patients participated in the study. We found that the doctors were the main source of information at both hospitals; one hospital delivered information systematically to every patient using a multimedia-based information disseminating tool while the second hospital delivered information verbally in an ad hoc manner. Those who received information using the multimedia tool understood what was said to them and were better prepared for the next step, while those who received information verbally did not retain much, were confused, and expressed dissatisfaction.

Conclusions

Although the doctors were the main source of information, patients experience difficulties in understanding what was said to them. Comprehensive information together with audiovisuals, when provided to H&N cancer patients based on their needs, seems to improve their understanding of their cancer and prepare them for their treatment.

Keywords

Cancer information Head and neck cancer patients Patients’ perceptions 

Notes

Acknowledgements

We acknowledge the CIHR Strategic Training Initiative in Health Research Program, Faculty of Dentistry-McGill University, Le Réseau de Recherche en Santé Buccodentaire et Osseuse (RSBO), and Alpha Omega Trust for their generous funding. We acknowledge the head and neck cancer teams at the McGill University Health Center and the Jewish General Hospital and the generous participation of the precious time of the head and neck cancer patients.

Compliance with ethical standards

Competing interests

The authors declare that they have no competing interests.

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Copyright information

© Springer-Verlag GmbH Germany 2017

Authors and Affiliations

  1. 1.Faculty of DentistryMcGill UniversityMontrealCanada
  2. 2.Department of Otolaryngology - Head and Neck SurgeryMcGill University Hospital CenterMontrealCanada

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