Quality of life of the family of children with asthma is not related to asthma severity
The quality of life for the family is an important outcome of childhood asthma. The aim of the study was to describe the quality of life in families who have a child with asthma. The Pediatric Quality of Life Inventory Family Impact Module was completed by the parents of 527 children with asthma. The median overall score was 75.0 (interquartile range 63.9, 87.5). The following factors were independently associated with lower quality of life: additional difficulties such as anxiety and financial hardship (3.81 [2.45, 5.93]), waking with asthma symptoms one or more nights a week (odds ratio 2.53 [1.34, 4.75]), regular use of symptoms reliever medication (2.47 [1.57, 3.87]), and female gender (1.97 [1.27, 3.05]). Lower socioeconomic status of the family and exposure to molds at home doubled the odds for lower quality of life. Physician’s diagnosed asthma severity and control were associated with quality of life in univariate, but not multivariate analysis.
What is Known:
• Childhood asthma as a chronic disease impacts the quality of life of the patient, but there is also an impact on the immediate family.
• There are relatively few studies exploring the quality of life of parents of a child with asthma; the results are heterogeneous and none has been carried out in an Eastern European country.
What is New:
• This is the first study to describe caregiver’s quality of life in an Eastern European population in the context of childhood asthma.
• The quality of life of the family of asthmatic child depends not only on factors related to asthma, but also non-asthma related factors such as poverty which play even more important role.
KeywordsAsthma Children Family Impact Quality of life
Asthma Control Test
Childhood Asthma Control Test
Cognitive Functioning Scale
Daily Activities Scale
Disability-adjusted life years
Emotional Functioning Scale
Family Relationships Scale
Pediatric Quality of Life Inventory Family Impact Module
Physical Functioning Scale
Social Functioning Scale
Quality of life
Authors express gratitude to participants of this study (children with diagnosed asthma and their parents) who agreed to participate in a study and complete questionnaires.
VT developed study protocol, collected data, performed data analysis, and wrote the manuscript. TA collected data and performed data analysis. AlgV contributed to data analysis; EV developed study protocol, collected data, and reviewed the manuscript. RS supervised the design and execution of the study. AH reviewed the manuscript. ST performed data analysis and reviewed the manuscript. ArV supervised the design and execution of the study, contributed to data collection and analysis, and reviewed the manuscript.
Compliance with ethical standards
The study was approved by Vilnius regional ethical committee, ref. no 158200-14-749-265.
Informed consent forms to participate in a study were signed by parents and children from 8 years old.
Conflict of interest
The authors declare that they have no conflict of interests.
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