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Child's Nervous System

, Volume 35, Issue 2, pp 257–265 | Cite as

The Latin American Brain Tumor Board teleconference: results of a web-based survey to evaluate participant experience utilizing this resource

  • Mohammad H. Abu Arja
  • Joseph R. Stanek
  • Andrés E. Morales La Madrid
  • Alvaro Lassaletta
  • Ute Bartels
  • Ibrahim Qaddoumi
  • Jonathan L. Finlay
  • Diana S. OsorioEmail author
Original Paper

Abstract

Purpose

The Latin American Brain Tumor Board (LATB) is a weekly teleconference connecting pediatric neuro-oncologists from referral centers in high-income countries with pediatric subspecialists from 20 Latin American countries since 2013. This survey explored the participants’ experience utilizing this resource.

Methods

A cross-sectional electronic questionnaire was distributed to 159 participants through email and Cure4Kids.

Results

Ninety-five respondents (60%) from all the participating countries completed the survey. Sixty-one reported frequent-attendance (≥ 1 per month), 23 reported infrequent-attendance (< 1 per month), and 11 never participated. The most frequently reported attendance-barriers were the subspecialist’s workload (64%), the timing of the teleconference (38%), and Internet connectivity problems (29%). Subspecialist’s workload was more frequently reported as a barrier compared with other barriers, in both the frequent- and infrequent-attendance groups (p < 0.05), with the exception of the timing of the meeting in the infrequent-attendance group. More than 80% of attendees found the frequency and duration of the teleconference were sufficient. Utilizing Spanish as the primary language was reported to enhance the recommendations by 93% of the attendees. Moreover, 84% reported that the recommendations (almost) always fit the local circumstances. Furthermore, 99% of attendees found the teleconference provided a continuing medical education opportunity. Finally, 96% of attendees (almost) always found that the provided recommendations helped to improve the outcomes/quality of life of the patients.

Conclusions

The LATB teleconference provided a valuable tool for the management of pediatric brain tumors in Latin America as it provided a feasible and easy to access continued medical education opportunity for the participants.

Keywords

Childhood brain tumors Central nervous system tumors Global oncology Lower and middle income countries Neuro-oncology Telemedicine 

Notes

Acknowledgments

We would like to thank Dr. Scott L. Coven, DO, MPH for his contribution to this study and his role in reviewing the manuscript.

Compliance with ethical standards

Conflict of interest

The authors declare that they have no conflict of interest.

Supplementary material

381_2018_4000_MOESM1_ESM.pdf (59 kb)
Online Resource 1 The survey questions (PDF 58 kb)
381_2018_4000_MOESM2_ESM.pdf (83 kb)
Online Resource 2 Detailed information of attendees’ answers to the survey questions (PDF 82 kb)
381_2018_4000_MOESM3_ESM.pdf (68 kb)
Online Resource 3 Participants’ responses to survey questions related to the post-teleconference summery reports (PDF 67 kb)
381_2018_4000_MOESM4_ESM.pdf (50 kb)
Online Resource 4 Subspecialites requested to be included in the Latin American Brain Tumor Board teleconference (PDF 49 kb)

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Copyright information

© Springer-Verlag GmbH Germany, part of Springer Nature 2018

Authors and Affiliations

  • Mohammad H. Abu Arja
    • 1
  • Joseph R. Stanek
    • 1
  • Andrés E. Morales La Madrid
    • 2
  • Alvaro Lassaletta
    • 3
  • Ute Bartels
    • 4
  • Ibrahim Qaddoumi
    • 5
  • Jonathan L. Finlay
    • 1
  • Diana S. Osorio
    • 1
    Email author
  1. 1.The Department of Hematology, Oncology, Blood and Marrow TransplantNationwide Children’s Hospital and The Ohio State UniversityColumbusUSA
  2. 2.The Department of Hematology and OncologyHospital Sant Joan de DéuBarcelonaSpain
  3. 3.The Pediatric Oncology, Hematology and Stem Cell Transplant DepartmentHospital Infantil Universitario Niño JesúsMadridSpain
  4. 4.The Department of Hematology OncologyHospital for Sick ChildrenTorontoCanada
  5. 5.Global Pediatric Medicine DepartmentSt. Jude Children’s Research HospitalMemphisUSA

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