Collection

Advancing measurement of children’s health-related quality of life- evidence from the QUOKKA (QUality OF Life in Kids: Key evidence to strengthen decisions in Australia) research program

A collection of papers from the QUOKKA Research Program on the measurement of HRQoL in pediatric populations, including new evidence on the psychometric characteristics of HRQoL instruments and issues relating to self- vs. proxy-report.

Editors

  • Wendy Ungar

    Wendy J. Ungar is a Senior Scientist and Director of TASK (Technology Assessment at Sick Kids) at the Hospital for Sick Children Research Institute and Professor in the Institute of Health Policy, Management and Evaluation at the University of Toronto. She holds the Canada Research Chair in Economic Evaluation and Technology Assessment in Child Health with a focus is on genomics and neurodevelopmental disorders. Her team maintains the PEDE database, a searchable database of pediatric economic evaluations used by HTA agencies around the world. Her book Economic Evaluation in Child Health was published by Oxford University Press in 2010.

  • Mike Herdman

    Mike has worked in the field of health technology assessment and outcomes research for over 25 years. He currently runs his own consulting and research company in Barcelona and is Head of Health Outcomes Research at the Office of Health Economics in London. His main areas of interest are the development, validation, application, and interpretation of patient reported outcome (PRO) measures. He has been a member of the EuroQol Group for 25 years, is Chair of the Group’s Younger Populations Working Group, and currently serves on the EuroQol Group’s Executive Committee. Mike has published over 150 peer reviewed articles and book chapters.

Articles (11 in this collection)