Collection
Advancing measurement of children’s health-related quality of life- evidence from the QUOKKA (QUality OF Life in Kids: Key evidence to strengthen decisions in Australia) research program
- Submission status
- Closed
Editors
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Wendy Ungar
Wendy J. Ungar is a Senior Scientist and Director of TASK (Technology Assessment at Sick Kids) at the Hospital for Sick Children Research Institute and Professor in the Institute of Health Policy, Management and Evaluation at the University of Toronto. She holds the Canada Research Chair in Economic Evaluation and Technology Assessment in Child Health with a focus is on genomics and neurodevelopmental disorders. Her team maintains the PEDE database, a searchable database of pediatric economic evaluations used by HTA agencies around the world. Her book Economic Evaluation in Child Health was published by Oxford University Press in 2010.
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Mike Herdman
Mike has worked in the field of health technology assessment and outcomes research for over 25 years. He currently runs his own consulting and research company in Barcelona and is Head of Health Outcomes Research at the Office of Health Economics in London. His main areas of interest are the development, validation, application, and interpretation of patient reported outcome (PRO) measures. He has been a member of the EuroQol Group for 25 years, is Chair of the Group’s Younger Populations Working Group, and currently serves on the EuroQol Group’s Executive Committee. Mike has published over 150 peer reviewed articles and book chapters.
Articles (11 in this collection)
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Meeting the Challenges of Preference-Weighted Health-Related Quality-of-Life Measurement in Children
Authors
- Wendy J. Ungar
- Michael Herdman
- Content type: Editorial
- Open Access
- Published: 09 May 2024
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Correction: Comparing the Psychometric Performance of Generic Paediatric Health‑Related Quality of Life Instruments in Children and Adolescents with ADHD, Anxiety and/or Depression
Authors (first, second and last of 8)
- Rachel O’Loughlin
- Renee Jones
- in collaboration with the Quality Of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) Project Team
- Content type: Correction
- Open Access
- Published: 25 March 2024
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Exploring the Use of Pictorial Approaches in the Development of Paediatric Patient-Reported Outcome Instruments: A Systematic Review
Authors (first, second and last of 9)
- Christine Mpundu-Kaambwa
- Norma B. Bulamu
- the Quality of Life in Kids: Key Evidence for Decision Makers in Australia (QUOKKA) project team
- Content type: Systematic Review
- Open Access
- Published: 13 February 2024
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Comparing the Psychometric Performance of Generic Paediatric Health-Related Quality of Life Instruments in Children and Adolescents with ADHD, Anxiety and/or Depression
Authors (first, second and last of 8)
- Rachel O’Loughlin
- Renee Jones
- in collaboration with the Quality Of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) project team
- Content type: Original Research Article
- Open Access
- Published: 08 February 2024
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An Investigation of Inter-Rater and Intra-Proxy Agreement in Measuring Quality of Life of Children in the Community Using the EQ-5D-Y-3L
Authors (first, second and last of 8)
- Diana Khanna
- Jyoti Khadka
- in collaboration with the Quality of Life in Kids: Key Evidence to Strengthen Decisions in Australia (QUOKKA) Project Team
- Content type: Original Research Article
- Open Access
- Published: 27 January 2024
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Psychometric Properties of Child Health Utility 9D (CHU9D) Proxy Version Administered to Parents and Caregivers of Children Aged 2–4 Years Compared with Pediatric Quality of Life Inventory™ (PedsQL)
Authors (first, second and last of 8)
- Xiuqin Xiong
- Natalie Carvalho
- Kim Dalziel
- Content type: Original Research Article
- Open Access
- Published: 27 January 2024
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Psychometric Performance Comparison of the Adapted versus Original Versions of the EQ-5D-Y-3L and -Y-5L in Proxy Respondents for 2- to 4-Year-Olds
Authors (first, second and last of 7)
- Alexander van Heusden
- Oliver Rivero-Arias
- in collaboration with the Quality Of Life in Kids: Key Evidence to Strengthen Decisions in Australia (QUOKKA) Project Team
- Content type: Original Research Article
- Open Access
- Published: 18 January 2024
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The Validity of the EuroQol Health and Wellbeing Short Version (EQ-HWB-S) Instrument in Parents of Children With and Without Health Conditions
Authors (first, second and last of 7)
- Cate Bailey
- Kim Dalziel
- In collaboration with the Quality of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) Project team
- Content type: Original Research Article
- Open Access
- Published: 18 January 2024
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Comparative Psychometric Performance of Common Generic Paediatric Health-Related Quality of Life Instrument Descriptive Systems: Results from the Australian Paediatric Multi-Instrument Comparison Study
Authors (first, second and last of 10)
- Renee Jones
- Rachel O’Loughlin
- on behalf of the Quality of Life in Kids: Key Evidence to Strengthen Decisions in Australia (QUOKKA) Project Team
- Content type: Original Research Article
- Open Access
- Published: 13 November 2023